Wow, a lot has happened already since I last updated... get used to me being behind, SORRY!
David and the kids came for the weekend. It was just what the Dr. ordered.
Oakley started using the potty! Yeah! He still wasn't emptying his bladder enough (still having to cath him intermittently) but he was going on his own! The doctors were pretty convinced he had lost this function, but Oakley proved them wrong! Way to go Oakley! :) Also, he started moving his toes a little! He's still not able to stand on his feet but he's moving his toes, that's progress! The doctors said one of the side effects of another chemo drug is drop foot. This means that he loses the ability to lift his feet at the ankles. So, really it could be a year before we know if he's even got the ability to move his feet and toes. Can't this little guy get a break?!
While the family was here visiting, we finally saw a new/old side of Oakley. Yep, we got to see him SMILE! It was so good to see him finally laughing and interacting with us. There were a couple nights where he wanted Harley to tickle him and they discussed how funny the cartoons were. It was so good to see these best of friends hanging out again.
Maverick wanted in on the sibling fun so he took Oakley for a ride in the wagon. Oh how Oakley loves to be outside. He begs to go outside at least once a day. It's hard telling him no on the days that his counts are too low to leave his room. Luckily his counts were up by the end of Dave's stay and we were able to take him outside. :)
Oakley has become quite the night owl. He plays grumpy all day and then by 11 PM, he's all fun and games. He loves just hanging out and eating of course. He loves playing with his Toy story characters, doing sticker books, playing his ABC computer game, and watching the Harry Potters. All of this until Mom & Dad can't keep their eyes open, usually around 2 AM we make him settle down and go to sleep. We can't bring ourselves to make him go to bed when he's in such a good mood. We enjoy hanging out with our old, silly Oakley.