Thursday, July 29, 2010

Home Sweet Home

I'm getting behind, be patient while I play catch up!

(I'll add pictures when I get back home)

Yep, we got to have our little guy home for almost a week! July 21st - 28th! It seriously was a bit of HEAVEN! :) David decorated his 'new' room really cute. (He switched the rooms around so now Harley & Maverick share a room and Oakley has his own room.) He doesn't really like his new room, he wants his old room, the one with Harley in it.

Oakley adjusted fast to being home... that is, he was more himself!
The first day back, he headed downstairs with Harley and back up again. That adventure wore him out but he made the trek atleast two other times while we were home. This was a HUGE accomplishment for him. It makes you much more appreciative of your abilities after you watch him maneuver himself up the stairs, those same stairs he used to be able to climb up and down with out any problems!

Oakley did great at following Dr.'s orders while we were home:

1. He did great at drinking the fluids the Dr.'s wanted him to drink (1.2 L/day). Oakley got very tired of us telling him to take a drink. He'd tell me, "ahhhhh mom, I said I'm tired of drinking" or "I DID!!!" He always did better when David came home from work. I'm not sure if David is better at convincing or threatening, let's think both! :)
2. He's peeing on his own! I think we had to only straight cath him 2 or 3 times before we decided he didn't need it, YEAH!!! (Sorry for those of you who don't really care to know this bit of information!) We didn't want to be the ones putting him through more than he already had been through. We're supposed to be his safety net.
3. He's smiling!!! This is what we were waiting and hoping for!

Oakley even graced us with his presence one night at dinner. It's been a couple months since he joined us at the dinner table. It was fun having the whole family around the table! Of course, it was Olive Garden that did the trick! Thanks Janie :) Maybe David is going to think twice before he turns his nose up to the suggestion of Olive Garden again! Hee Hee, my plan was brilliant! :)

It's been soooo much fun watching Harley, Oakley & Maverick "play together" or as they enjoy it, fighting and arguing over anything and everything. Better yet, we hearing it! :) It's also become a ritual to head outside around 8:30 or 9, after Oakey's nap (I'll get started on that later). He loves sitting in the lawn chair watching the other two play and then he usually insists on one trip around the block before we head in.

As for sleeping habits... they're AWFUL!!!! What's worse, he's got Harley & Maverick on his same late night schedule! Really, how can we tell them no when they're all having fun, laughing, and giggling at midnight?! Easy, we head to bed and hand Oakley the remote. He knows what button to push when everyone is sacked out on the couch! It's a GREAT system we've got going. As I mentioned before, he's gotten in this bad habit of taking a 2-3 hour nap around 5. This makes for very loooooooong evenings. The upside to all of this, Harley & Oakley usually sleep in until 9:00 -9:30ish and Maverick, until 10:30!

We thoroughly enjoyed our visit home.

Actually, WE LOVED IT!!!


  1. Great news!! I am so happy to hear that he is doing so well. I hope that it only continues to get better for you all and that he will continue to fight! We love you and are hoping for the best!!

  2. What precious times! You have such a beautiful family! And congrats on the new little one on the way. . . God bless! :)

  3. We're so glad that you got to enjoy some happy time at home. Hopefully it won't be too long before you're back there again. Hope this trip to SL goes well for Oakley. Hang in there! Love you all!

  4. Glad he had fun and the other kids. Let us know when you are home again.

  5. Oh Joy - just found your blog here. What a trooper Oakley is - and what an awesome mom he has to take such good care of him! Sending all my love and prayers your way. Please let me know if there is anything I can do for you.

  6. We are so glad you guys got to enjoy some time back at home. There is nothing like your own home. I thought that was so cute he missed sleeping with Harley, and how he loves to put his chair outside to watch the kids play. Little Oakley is such a trooper. I hope your trip to SL was good and I'm so glad you are back home now. We love you and we are praying for your family. Hang in there buddy!